Category Archives: Uncategorized

FREE ~ Presentation on ~ Guardianship ~

The Grassroots Advocacy Partnership for People with Disabilities (GAP) & Guardianship Associates of Utah Is offering to ALL Families, Parents & Professionals a Free Presentation on ~ Guardianship ~

What and when do we apply for Guardianship?
Why is Guardianship important?
What is the process of obtaining Guardianship?
How much does the whole process cost?

Where ~ Carmen B. Pingree Center for Children w/ Autism 780 Guardsman Way, SLC, Utah 84108
When ~ February 27th, 2013 (Wednesday)
Time ~ 6:00-8:00pm

Following the Presentation there will be a question and answer time available.

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Family to Family Network Meeting ~ Salt Lake City

Family to Family Network Meeting
Tuesday February 26
7:00 pm at South Valley School
8400 South Redwood Road
We will be discussing
FINANCES and how YOU can be prepared for your child’s future
Questions you may want to ask
What happens to my child financially if something happens to me?
How can I prepare for my child’s financial future?
How will a trust impact my child’s Social Security benefits?
How does guardianship affect my child’s finances?
How do I get started?
Join us and learn from experts in the field of special needs care.
Contact Lisa at augman@q.com
for more information or with your questions
See you there!

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Daytime Family to Family Network ~ Salt Lake City

Daytime Family to Family Network
Tuesday February 26, 2013
4444 South 700 East Suite 203 (CTA Offices) SLC, Utah
10:00 am
Come and learn about these two great resources.
Ask your questions
Get the support you need for our children with disabilities of all ages and all abilities

Kathy Self will join us from the Utah Independent Living Center. Her expertise in working with youth assisting them to transition from school to community living. The Utah Independent Living Center is here to assist persons with disabilities achieve greater independence by providing services and activities which enhance independent living skills and promote the public’s understanding, accommodation, and acceptance of their rights, needs and abilities. What does that mean for you and your child with a disability? Did you know there are classes held at the Center to teach these skills?

We will also have someone from the Utah Parent Center talk with us about all the great things the Parent Center has for you! The Utah Parent Center provides training to families with children with disabilities and special health care needs. Did you know that your school district may have a parent consultant and what that person can do for you? What are the other workshops and trainings that are offered to parents?

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The Kalemia Foundation

The Kalemia Foundation was started by the family of two children affected by Lebers Congenital Amaurosis, a disease that causes blindness from birth. We want to make a difference by supporting people who make a difference for Blind kids in Utah.
Our Mission

We are dedicated to Braille Literacy and Cane use to promote independence in blind individuals. We are associated with THE FOUNDATION FOR RETINAL RESEARCH. They are doing a fantastic work to unite families affected by LCA and to find a cure for Retinal Blindness. They also have a child with LCA. We are committed to helping those who have been the most beneficial in helping our children in real and useful ways. We are also dedicated to getting more professionals into the Special Education field, trained in the areas of Visual Impairment.

Company Overview
The Kalemia Foundation raises funds through an annual race and other endeavors to give to those who are directly helping individuals who are blind.
This years race is on Saturday May 4 at the Wasatch County Special Events Center,415 S. Southfield Road (1200 W.)
Heber City, Utah 84032

There will be a 10K, a 5K, and a miler.

For questions, information, or would like to volunteer at the race, you can email Merrie at kalemia.org@gmail.com

You can also find more information on LCA at http://www.tfrr.org/index.php?m=19
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Article- Support Special Education

http://www.deseretnews.com/article/865573676/Governor-calls-for-parents-lawmakers-to-unite-behind-education-goals.html

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Daytime Family to Family Network ~ Salt Lake City

Daytime Family to Family Network
Tuesday February 26, 2013
4444 South 700 East Suite 203 (CTA Offices)
10:00 am
Come and learn about these two great resources.
Ask your questions
Get the support you need for our children with disabilities of all ages and all abilities

Kathy Self will join us from the Utah Independent Living Center. Her expertise in working with youth assisting them to transition from school to community living. The Utah Independent Living Center is here to assist persons with disabilities achieve greater independence by providing services and activities which enhance independent living skills and promote the public’s understanding, accommodation, and acceptance of their rights, needs and abilities.
What does that mean for you and your child with a disability? Did you know there are classes held at the Center to teach these skills?

We will also have someone from the Utah Parent Center talk with us about all the great things the Parent Center has for you! The Utah Parent Center provides training to families with children with disabilities and special health care needs. Did you know that your school district may have a parent consultant and what that person can do for you? What are the other workshops and trainings that are offered to parents?

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AUCD – The Southeast Regional Consortium and AUCD Presents: Bullying and Ostracism in Children and Youth with Special Health Care Needs CYSHCN

AUCD – The Southeast Regional Consortium and AUCD Presents: Bullying and Ostracism in Children and Youth with Special Health Care Needs CYSHCN.

This is a free webinar that is being held on Wednesday, February 20, 2013 from 12:00 – 1:00pm local time. For further details and to register, click on the link above.

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Article: Siblings of Sick Children

http://www.deseretnews.com/article/865573274/What-about-me-Growing-up-with-a-seriously-sick-sibling.html

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Did you know 100% of your donation goes directly to the care of children?

Primary Children’s Medical Center is the only children’s hospital in the country where 100% of your donation goes directly to the care of the children. Call 801-575-KIDS and make a pledge. If you can’t donate today please help spread the word by SHARING this picture     

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Early Intervention Fact Sheet

nding Request for Utah’s Baby Watch
Early Intervention Program that is the Baby Watch Early Intervention Program?
The Baby Watch Early Intervention Program is a statewide program that provides support and services to families with infants and toddlers who have developmental delays, disabilities or diagnosed
conditions, such as Down Syndrome or Spina Bifida.  What  does the Baby Watch Early Intervention  Program do for children and families?

 
While  all infants and toddlers learn at their own pace, some  may need extra help to develop certain  skills.  The Baby Watch Early Intervention Program  conducts a complete evaluation of  a  child’s current development, including hearing and vision screenings. The services offered to eligible  children
include  speech,  physical, and  occupational therapies,  family training,  nursing, social work, and nutritional support.
Early intervention supports families to understand  their child’s delay or disability  and help  their
child develop and learn age  appropriate skills to reduce the negative impact of  the  disability on the
child and their family.

In SFY12, more than 10,000 children received services through the Baby Watch Early Intervention
Program. Why  is it important  to  intervene early in a child’s life? • 85% of  brain development occurs by age three; therefore,  it is critical to intervene early when a child’s brain is  most capable of change.

• Early intervention programs can help parents detect the symptoms associated with Autism Spectrum Disorder and begin treatment early, when their child’s brain is  most capable of change. This is critical because Utah has the highest rate for children diagnosed with  Autism—1 out of 47.

The national rate of 1out of 88 children. 

• Between SFY09 and SFY11, an average of 36% of children who  exited the Baby  Watch Early Intervention Program made enough progress that  they did not require preschool special  education services.
• The
Early
Childhood
Outcomes
Scale
is
used
to
track
children’s
progress
after
they
have
received
early
intervention
services.
In
SFY12,
seventy-­‐eight
percent
(78%)
of
these
children
showed
improvement
in
their
knowledge
and
skills
and
their
development
moved
closer
to
typically
developing
children
of
the
same
age.
What
does
the
Utah
Baby
Watch
Early
Intervention
Program
need?
The
number
of
Utah
children
referred
for
early
intervention
services
has
grown
49%
since
SFY04
yet
funding
has
remained
relatively
flat.
The
program
needs
additional
funding
to
continue
to
serve
the
growing
number
of
infants
and
toddlers
with
developmental
delays
and
disabilities.
The
people
of
Utah
are
committed
to
funding
education
for
the
growing
number
of
children
in
our
state.
Children
who
receive
early
intervention
services
have
greater
chances
of
success
in
school
and
throughout
their
lifetimes.
In
fact,
research
shows
that
early
intervention
is
more
effective
than—and
often
reduces
the
need
for—later
interventions
for
some
children,
and
at
a
lesser
cost.
Please
support
the
Utah
Department
of
Health
funding
request
for
the
Baby
Watch
Early
Intervention
Program.
W

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