Category Archives: Region 9

Join GAP, LCPD, UDDC, and DLC in Requesting Respite

 

WHY UTAH NEEDS A FAMILY RESPITE PROGRAM FOR THOSE
IMPACTED BY DISABILITY

Four advocacy organizations (Grassroots Advocacy Partnership,  Legislative Coalition for People with Disabilities, Utah Developmental Disabilities Council, and Disability Law Center) have come together to request an appropriation of $350,000 to provide critical support to families on the Division of Services for People with Disabilities (DSPD) waiting list through a Family Respite Program (FRP).

There are 1,878* families waiting for services throughout Utah. The FRP will help some of these families with respite services they need.

⫸ Respite care is relief for those who are caring for family members with disabilities. Respite can prevent the need for more intensive services that the family would not otherwise choose. Respite programs provide planned short-term and time-limited breaks for families and other unpaid caregivers of children and adults with disabilities. Respite helps keep the family unit together. The FRP will allow families to hire caregivers to provide direct care in their home. For example, a caregiver may be hired for a few hours a week, giving the family caregiver an opportunity to focus on other siblings.
⫸ Respite care is the MOST requested DSPD service because it gives families a break from the constant stress of caregiving and helps prevent further crisis. These individuals are already determined Medicaid eligible and qualified for much more costly services.
⫸ The FRP is a Utah designed program and is intended to serve a limited number of families without additional federal oversight. FRP supports the collection and analyses of data on the program’s effectiveness and possibly a limited services-type waiver.
⫸ Funding the FRP at $350,000 will begin to serve families with the most critical needs-families near or in crisis today.
⫸ The value of respite cannot be overstated. It provides the family caregiver with dependable care options while the caregiver engages in self-care and tends to other family responsibilities. Respite also can be a source of prevention for potential abuse and neglect. Uninterrupted and persistent stress among family caregivers has been shown to contribute to negative health outcomes, increased use of medications, and increases in depression.(1) Furthermore, the U.S. Centers for Disease Control and Prevention suggest respite care as a means for keeping balance in the family (see www.cdc.gov Caregiving Tips for Families of People With Disabilities).

WHAT WE NEED FROM YOU:

Please join us in asking your legislators to support this appropriations request. Contact your state senator and representative. Tell them you are a member of GAP and that you support the appropriation for a Family Respite Program. Send emails to your family and friends and ask for their support. Share this information with other disability organizations. A printable copy of the fact sheet is available here.

(1)As just two of many research findings about the value of respite, see the Virginia Department for Aging and Rehabilitative Services. virginia.gov; and the Administration for Children and Families at U.S. Department of Health and Human Services.

*As of January 22, 2013

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Read the Latest GAP Newsletter

Click on the link to view the latest GAP newsletter. It contains information on advocating from a distance, how to give public testimony, video of Jacob Hansen testifying, and the respite appropriations request that GAP is supporting.

GAP Newsletter, Legislative Session Week 2

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About Independent Living

About Independent Living.

What is Independent Living?

About Independent Living.

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Legislative Training

Tues. Jan, 29th 2013 @ 2:00pm. Come Join us at the Red Rock Center for Independence to learn how to be an effective advocate.

70_legislative-training.pdf (application/pdf Object).

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Utah Symphony – Utah Opera Education – Events for Individuals with Special Needs

January 24, 2013
7:00 pmto10:00 pm

The Utah Symphony | Utah Opera offers an annual concert for children of all ages with special needs and their families. We present this concert because we know that many families cannot attend cultural events together because their special needs child acts in distracting ways. We feature our Opera Resident Artists with the Utah Symphony on the Capitol Theater Stage in a special concert where everyone understands the difficulty of keeping these family members quiet in their seats. This concert is FREE but registration is required.

WEB--special-needs-concert-

 

 

 

 

 

 

 

 

Utah Symphony – Utah Opera Education – Events for Individuals with Special Needs.

 

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LCPD Legislative Reception February 7, 2013

February 7, 2013
4:00 pmto5:45 pm

Please join us at the LCPD Legislative Reception. This is a wonderful opportunity to meet your elected officials. Call them prior to let them know you will be attending. Invite your local People First chapter to attend with you.

For a printable flyer, please click here.

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GAP Newsletter — Pre Session

GAP’s most recent newsletter contains a link to Governor Herbert’s budget, lists of committee members for the upcoming Utah State Legislature, links to websites where you can contribute for victims of the Newtown shootings, and statements from NAMI and the autism community regarding the tragedy. There is also a link where you can sign up to join our mailing list.

GAP Newsletter — Pre Session.

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Free Autism Webinar

November 20, 2012
7:00 pm

Assessment Practices for Minimally Verbal Children with Autism

Event Date: Tuesday, November 20th

Event Time: 7pm Mountain Standard Time

Speaker: Nancy Brady, Ph.D.

Register for free HERE

Description:

Standardized assessments are of limited value for individuals who communicate nonverbally or with very few words. Dr. Brady will discuss how to combine information from caregiver report with information from structured assessments to describe how individuals communicate with gestures, vocalizations, signs, symbols as well as spoken words. She will describe a communication scale called the Communication Complexity Scale that she and colleagues developed to describe communication development starting with awareness of one’s surroundings up through beginning word use.

Bio of Nancy Brady, Ph.D.

Nancy Brady, Ph.D. is a professor at the University of Kansas. She has been conducting research on communication assessments and interventions for over 20 years. She is a certified speech language pathologist and has over 40 publications.

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Special Needs Halloween Carvinal

October 30, 2012
5:30 pmto6:30 pm
When: Tuesday, October 30th, 5:30pm – 6:30pm
Where: Dixie State College
Gardner Ballroom-Gardner Student Center (map)
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Walk MS Southern Utah 2012

October 20, 2012
8:00 amto2:00 pm

Walk MS 2012 – Southern Utah will take place on Saturday, October 20th at Tonaquint Park, located at just west of the Southgate Golf Course at 1851 South Dixie Drive in St. George.

8:00 a.m.          Check-in begins
8:00-9:45 a.m.   Continental Breakfast & Festivities
                          – Mission Wall & Team t-shirt voting
- Team and Sponsor Tables
9:45 a.m.          Program Begins
10:00 a.m.        Walk MS starts
 with the approximate three mile route going along the beautiful Santa Clara river.

Your participation means we will be working to support programs, services, and research sponsored by the National Multiple Sclerosis Society, and that makes a huge difference to the people who must fight MS every day of their lives.

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. They simultaneously fund research for a cure while also helping people who currently live with MS lead more fulfilling lives.

Join as an individual, join a team, or create a team – and help to support a world free of MS.

Date: October 20, 2012
Location: Tonaquint Park, St. George
Event Manager Name: Karen Tapahe
Email: utahevents@nmss.org
For more information call: 801-424-0112 ext. 114 or 800-344-4867
Fundraising deadline: November 29, 2012

OR click here for more information

 

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