Category Archives: region 4

Join GAP, LCPD, UDDC, and DLC in Requesting Respite

 

WHY UTAH NEEDS A FAMILY RESPITE PROGRAM FOR THOSE
IMPACTED BY DISABILITY

Four advocacy organizations (Grassroots Advocacy Partnership,  Legislative Coalition for People with Disabilities, Utah Developmental Disabilities Council, and Disability Law Center) have come together to request an appropriation of $350,000 to provide critical support to families on the Division of Services for People with Disabilities (DSPD) waiting list through a Family Respite Program (FRP).

There are 1,878* families waiting for services throughout Utah. The FRP will help some of these families with respite services they need.

⫸ Respite care is relief for those who are caring for family members with disabilities. Respite can prevent the need for more intensive services that the family would not otherwise choose. Respite programs provide planned short-term and time-limited breaks for families and other unpaid caregivers of children and adults with disabilities. Respite helps keep the family unit together. The FRP will allow families to hire caregivers to provide direct care in their home. For example, a caregiver may be hired for a few hours a week, giving the family caregiver an opportunity to focus on other siblings.
⫸ Respite care is the MOST requested DSPD service because it gives families a break from the constant stress of caregiving and helps prevent further crisis. These individuals are already determined Medicaid eligible and qualified for much more costly services.
⫸ The FRP is a Utah designed program and is intended to serve a limited number of families without additional federal oversight. FRP supports the collection and analyses of data on the program’s effectiveness and possibly a limited services-type waiver.
⫸ Funding the FRP at $350,000 will begin to serve families with the most critical needs-families near or in crisis today.
⫸ The value of respite cannot be overstated. It provides the family caregiver with dependable care options while the caregiver engages in self-care and tends to other family responsibilities. Respite also can be a source of prevention for potential abuse and neglect. Uninterrupted and persistent stress among family caregivers has been shown to contribute to negative health outcomes, increased use of medications, and increases in depression.(1) Furthermore, the U.S. Centers for Disease Control and Prevention suggest respite care as a means for keeping balance in the family (see www.cdc.gov Caregiving Tips for Families of People With Disabilities).

WHAT WE NEED FROM YOU:

Please join us in asking your legislators to support this appropriations request. Contact your state senator and representative. Tell them you are a member of GAP and that you support the appropriation for a Family Respite Program. Send emails to your family and friends and ask for their support. Share this information with other disability organizations. A printable copy of the fact sheet is available here.

(1)As just two of many research findings about the value of respite, see the Virginia Department for Aging and Rehabilitative Services. virginia.gov; and the Administration for Children and Families at U.S. Department of Health and Human Services.

*As of January 22, 2013

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Posted in Action Alert, Region 1, Region 10, Region 11, Region 2, Region 3, region 4, Region 5, Region 6, Region 7, Region 8, Region 9 | Leave a comment

Read the Latest GAP Newsletter

Click on the link to view the latest GAP newsletter. It contains information on advocating from a distance, how to give public testimony, video of Jacob Hansen testifying, and the respite appropriations request that GAP is supporting.

GAP Newsletter, Legislative Session Week 2

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Posted in Newsletters, Region 1, Region 10, Region 11, Region 2, Region 3, region 4, Region 5, Region 6, Region 7, Region 8, Region 9 | Leave a comment

Utah Symphony – Utah Opera Education – Events for Individuals with Special Needs

January 24, 2013
7:00 pmto10:00 pm

The Utah Symphony | Utah Opera offers an annual concert for children of all ages with special needs and their families. We present this concert because we know that many families cannot attend cultural events together because their special needs child acts in distracting ways. We feature our Opera Resident Artists with the Utah Symphony on the Capitol Theater Stage in a special concert where everyone understands the difficulty of keeping these family members quiet in their seats. This concert is FREE but registration is required.

WEB--special-needs-concert-

 

 

 

 

 

 

 

 

Utah Symphony – Utah Opera Education – Events for Individuals with Special Needs.

 

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Posted in Events, Region 1, Region 10, Region 11, Region 2, Region 3, region 4, Region 5, Region 6, Region 7, Region 8, Region 9, Uncategorized | Leave a comment

LCPD Legislative Reception February 7, 2013

February 7, 2013
4:00 pmto5:45 pm

Please join us at the LCPD Legislative Reception. This is a wonderful opportunity to meet your elected officials. Call them prior to let them know you will be attending. Invite your local People First chapter to attend with you.

For a printable flyer, please click here.

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Posted in Events, Region 1, Region 10, Region 11, Region 2, Region 3, region 4, Region 5, Region 6, Region 7, Region 8, Region 9 | Leave a comment

Price Disability Resource and Legislative Information Night

January 17, 2013
6:30 pmto8:30 pm

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Posted in Events, Region 3, region 4 | Leave a comment

GAP Newsletter — Pre Session

GAP’s most recent newsletter contains a link to Governor Herbert’s budget, lists of committee members for the upcoming Utah State Legislature, links to websites where you can contribute for victims of the Newtown shootings, and statements from NAMI and the autism community regarding the tragedy. There is also a link where you can sign up to join our mailing list.

GAP Newsletter — Pre Session.

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Posted in Newsletters, Region 1, Region 10, Region 11, Region 2, Region 3, region 4, Region 5, Region 6, Region 7, Region 8, Region 9 | Leave a comment

Autism: Coming of Age

March 27, 2012
6:00 pmto8:00 pm

Weber State University has partnered with Utah Education Network and the Autism Council of Utah to present a screening and panel discussion of the documentary “Autism: Coming of Age”. The short film was produced by public television station WGBY (Springfield, Mass.) to help raise awareness of the challenges faced by individuals with Autism and their families.

This is event is being held March 27, 2012 at 6:00pm in the Marriott Health Building, Room 101, Weber State University

Following the film, parents, physicians, counselors, and advocates will share their experiences with coming-of-age decisions. Topics of discussion will include guardianship, government benefits, employment, housing needs, education, social and leisure life, and independent living.

The event is free, but space is limited. Please register to reserve a seat. Call 801-626-8126 for more information or register online at:

http://saweb.weber.edu/saxtra/AutsimComingOfAge/Default.aspx

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Posted in Events, Region 1, region 4, Region 5, Region 6, Uncategorized | Leave a comment

Daytime Family to Family Network ~ October 12th from 10:00 am – 12:00 Noon

October 12, 2011
10:00 amto12:00 pm

Daytime Family to Family Network ~ Join us on Wednesday, October 12 from 10:00 am to 12 noon at our new location 4444 South 700 East Suite 203 (northwest corner of 4500 S 700 E) as we bring back the Snack and Share. We will bring toys, decorations, clothes and knowledge to share and you can, too!
We will have information about the Grassroots Advocacy Partnership, and the Holiday Gift Box by UAID,(Utah Association for the Intellectually Disabled) along with other upcoming events to share. See you there!

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Posted in Events, region 4, Uncategorized | Leave a comment

Thank you so much to those of you who have requested Circus tickets!

Thank you so much to those of you who have requested Circus tickets! We are now out of tickets but will keep you all posted when more tickets to additional events come up. Thanks again!

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Free Circus Tickets!

Thanks to our friends at Shartix we will be able to offer some free Circus tickets to families of individuals with disabilities. I will be posting more information about these tickets tomorrow. Thanks!
www.sharetix.org

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Posted in Events, region 4 | 5 Comments