Category Archives: Region 10

Join GAP, LCPD, UDDC, and DLC in Requesting Respite

 

WHY UTAH NEEDS A FAMILY RESPITE PROGRAM FOR THOSE
IMPACTED BY DISABILITY

Four advocacy organizations (Grassroots Advocacy Partnership,  Legislative Coalition for People with Disabilities, Utah Developmental Disabilities Council, and Disability Law Center) have come together to request an appropriation of $350,000 to provide critical support to families on the Division of Services for People with Disabilities (DSPD) waiting list through a Family Respite Program (FRP).

There are 1,878* families waiting for services throughout Utah. The FRP will help some of these families with respite services they need.

⫸ Respite care is relief for those who are caring for family members with disabilities. Respite can prevent the need for more intensive services that the family would not otherwise choose. Respite programs provide planned short-term and time-limited breaks for families and other unpaid caregivers of children and adults with disabilities. Respite helps keep the family unit together. The FRP will allow families to hire caregivers to provide direct care in their home. For example, a caregiver may be hired for a few hours a week, giving the family caregiver an opportunity to focus on other siblings.
⫸ Respite care is the MOST requested DSPD service because it gives families a break from the constant stress of caregiving and helps prevent further crisis. These individuals are already determined Medicaid eligible and qualified for much more costly services.
⫸ The FRP is a Utah designed program and is intended to serve a limited number of families without additional federal oversight. FRP supports the collection and analyses of data on the program’s effectiveness and possibly a limited services-type waiver.
⫸ Funding the FRP at $350,000 will begin to serve families with the most critical needs-families near or in crisis today.
⫸ The value of respite cannot be overstated. It provides the family caregiver with dependable care options while the caregiver engages in self-care and tends to other family responsibilities. Respite also can be a source of prevention for potential abuse and neglect. Uninterrupted and persistent stress among family caregivers has been shown to contribute to negative health outcomes, increased use of medications, and increases in depression.(1) Furthermore, the U.S. Centers for Disease Control and Prevention suggest respite care as a means for keeping balance in the family (see www.cdc.gov Caregiving Tips for Families of People With Disabilities).

WHAT WE NEED FROM YOU:

Please join us in asking your legislators to support this appropriations request. Contact your state senator and representative. Tell them you are a member of GAP and that you support the appropriation for a Family Respite Program. Send emails to your family and friends and ask for their support. Share this information with other disability organizations. A printable copy of the fact sheet is available here.

(1)As just two of many research findings about the value of respite, see the Virginia Department for Aging and Rehabilitative Services. virginia.gov; and the Administration for Children and Families at U.S. Department of Health and Human Services.

*As of January 22, 2013

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Read the Latest GAP Newsletter

Click on the link to view the latest GAP newsletter. It contains information on advocating from a distance, how to give public testimony, video of Jacob Hansen testifying, and the respite appropriations request that GAP is supporting.

GAP Newsletter, Legislative Session Week 2

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Utah Symphony – Utah Opera Education – Events for Individuals with Special Needs

January 24, 2013
7:00 pmto10:00 pm

The Utah Symphony | Utah Opera offers an annual concert for children of all ages with special needs and their families. We present this concert because we know that many families cannot attend cultural events together because their special needs child acts in distracting ways. We feature our Opera Resident Artists with the Utah Symphony on the Capitol Theater Stage in a special concert where everyone understands the difficulty of keeping these family members quiet in their seats. This concert is FREE but registration is required.

WEB--special-needs-concert-

 

 

 

 

 

 

 

 

Utah Symphony – Utah Opera Education – Events for Individuals with Special Needs.

 

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Posted in Events, Region 1, Region 10, Region 11, Region 2, Region 3, region 4, Region 5, Region 6, Region 7, Region 8, Region 9, Uncategorized | Leave a comment

LCPD Legislative Reception February 7, 2013

February 7, 2013
4:00 pmto5:45 pm

Please join us at the LCPD Legislative Reception. This is a wonderful opportunity to meet your elected officials. Call them prior to let them know you will be attending. Invite your local People First chapter to attend with you.

For a printable flyer, please click here.

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Free Dinner Date Night

Sponsored by Duchesne County Family to Family Network.  
Thursday February 7 @ 6:30 p.m. At the Steakout Restaraunt in Altamont, Utah. We are proud to present a speaker all the way from Cedar City, Parent advocate for families in the disability community, wife, mother, 17+ years experience having a child with Autism, LuWenn Jones.

Divorce rate statistics for couples with children with disabilities is 80-90%. We need to make time for our spouse/partner and celebrate our relationships. Leaving our stressful lives at home If for only a few hours can be a wonderful time to reconnect, and since it’s almost Valentines Day, it’s seems like a perfect time!

If you’d like to join us you may RSVP on our Facebook page (Duchesne County Family to Family Network) or contact Christie Rhoades at
(435)738-2943 no later than Friday Jan 25.

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GAP Newsletter — Pre Session

GAP’s most recent newsletter contains a link to Governor Herbert’s budget, lists of committee members for the upcoming Utah State Legislature, links to websites where you can contribute for victims of the Newtown shootings, and statements from NAMI and the autism community regarding the tragedy. There is also a link where you can sign up to join our mailing list.

GAP Newsletter — Pre Session.

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Sending out a huge Thank You….

From the Duchesne County Family to Family Network to Newfield Oilfield Company for their generous donation of $3000.00 to our network! It means the world to me and so many families that have children with special needs. We promise to put the money to good use! Thank you again.

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Posted in Region 10 | Tagged donation, duchesne county, family to family, Newfield, special needs | Leave a comment

Guardianship Associates of Utah presents….

March 3, 2013
7:06 pm

A free training seminar in Duchesne at Duchesne Elementary 198 W. 300 N. on Tuesday November 20 at 6:30pm – 8:00 pm The need for applying Guardianship varies in many situations. Many parents of special needs children need to be aware of the need for guardianship once their child turns 18. It can help protect them and also give you as the parent or guardian rights to help make decisions that our special needs loved ones may need help with. This presentationis VERY informative and gives you many options. Even if you have younger children you may want to come because applying can be very costly and may need to be saved up for. You can check out their websiteat guardianshiputah.org or you may contact me Christie Rhoades for questions. 435-738-2943 or rhoadeschristie@gmail.com

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Duchesne County Family to Family Movie Party! Hurry and reserve your tickets…

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Family Fun Literacy Night in Duchesne County


Bring the entire Family and enjoy ConAmore & Duchesne County Preschool’s Literacy Night.
Thursday October 25 6:00-7:00 p.m. ConAmore Gymnasium
Each family will recieve a free book, also a free picture with “Cat in the Hat”, lots of popcorn, door prizes and lots & lots of Stories!

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Posted in Region 10, Uncategorized | Tagged family, free book, fun, literacy, Read | Leave a comment