Monthly Archives: May 2012

This Friday: Free Webinar to Discuss Strategies for Ratification of the CRPD!

June 1, 2012
12:00 pmto1:00 pm

To join the discussion with disability advocates from across the country who want ratification of the Convention on the Rights of Persons with Disabilities, join the webinar on Friday, June 1, 2012 from 12:00pm to 1:00pm Mountain time. Click below for more details:

email : Webview : This Friday: Free Webinar to Discuss Strategies for Ratification of the CRPD!.

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Disabilities can’t abate charity cyclist ~ By Doug Robinson, Deseret News

Bradley Hintze wants your help. He wants to ride his bike to raise money for people with disabilities and needs donations.

Yeah, you’ve heard this before, this business of people climbing mountains, rollerblading across the country, running a marathon a week, sailing around the world, whatever, to raise money or awareness for some cause. So Hintze wants to enter the Ride Without Limits 100-miler this fall in North Carolina to raise money for United Cerebral Palsy and kids with disabilities. Get in line, right?

There’s just one catch: Hintze has his own physical disabilities. He has the double whammy — cerebral palsy and cervical dystonia, a disease that causes muscles to contract constantly — in this case, it pulls Hintze’s face and neck to his left shoulder. It’s great for left turns, but it’s exhausting and makes speech difficult.

In other words, people should be riding bikes for Hintze, not vice versa.

This is what Hintze says to that: “I have a great passion for helping people who are in a situation like me — or like I was — and showing them they can do whatever they want. All limitations are perceived; they are not real.”

Hintze should know. Maybe you recall a story about him in the Deseret News three years ago. After graduating from high school, Hintze worked in construction for a couple of years, living with his parents in Sandy. He never gave college a thought because “I thought it was for smart people and people with money.” Then there were the physical challenges he faced in living an independent life at school.

Encouraged by others, he enrolled at Utah State, where fellow students — complete strangers — stopped him just to shake his hand and thank him for the inspiration they derived from watching him lurch to class ever day, head listing to the left. USU presented Hintze with the school’s Legacy of Utah State Award, which is presented annually to the student who represents “the heart and soul of the university” and who is committed to study, service and perseverance through adversity.

By the time he graduated with a degree in biochemistry, he was fielding scholarship offers from Pitt, North Carolina, Utah, Virginia, New York State and Duke. He chose Duke, where he recently completed his third year in a doctoral program.

Again, he has inspired others. Local TV station WRAL recently aired a story about Hintze and his academic pursuits. It includes an interview with fellow student Christopher Williams, who says, “I hate to admit this sort of thing, but when I first met Bradley in the back of my mind I discounted people with dystonia and, well, I can’t do that anymore. Bradley has pushed me a little closer to the decent human being I should’ve been in the first place.”

Another classmate, Liz Videau, thought the report missed part of the story. “They concentrated on his disability,” Videau told the Deseret News. “They missed how he interacts with people, that he is a kind, wise and insightful human being. He doesn’t make anything of his disability. He uses that to help others. That’s what they missed — the heart of this young man. The rest of us have an inability to give of ourselves. We’re the ones with the disability.”

Videau continued, calling Hintze an awe-inspiring and gifted student who leads a balanced life of academics, society and physical activity. “He’s not like most graduate students who totally immerse themselves in academics,” she said. Translation: He’s not a geek.

The 29-year-old Hintze rides 30 miles every other day, 40 on weekends, but he plans to add 15-milers on the other days, largely because he doesn’t think he is fit enough yet to finish a 100-mile ride. At this point, Videau warns him about doing “another face plant.” In the fall of 2010, he ran his tire into a crack in the road and went down hard, smacking his head on the pavement. His helmet prevented serious injury, but he was dazed and cut up. Passers-by took him to the doctor.

He didn’t let his disabilities stop him, so he wasn’t about to let a fall slow him down. He is a regular sight on the roads around Durham.

Meanwhile, he is trying to raise money through his blog. To enter the Ride Without Limits, bikers are required to raise a minimum of $500; Hintze has raised three times that amount, and he has set a goal of $3,000. That’s the part where Hintze needs some help.


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Carbon School District Summer Lunch Program FREE!

Carbon School District summer lunch program will be held from June 4- August 3.   The Castle Valley Center site will also be serving breakfast.  The Castle Valley Center will serve breakfast from 8:30-9:00 am and lunch from 11:30- 12:30 pm  Monday thru Friday.  Bruin Point Elementary in East Carbon will serve lunch from 11:30-12:30 pm Monday thru Thursday.  Sally Mauro Elementary will serve lunch from 11:00-12:00 pm Monday thru Thursday .  Lunch is provided free for all children 18 and under.  Cost for an adult is $3.00.  Baby food is available.  There are a few rules that need to be followed, all food must be eaten at the school and adults may not eat from any child’s plate.

The summer lunch program is a great opportunity for children to have some fun, make some new friends and use their social and communication skills.                                   











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SSI Webinar

June 15, 2012
2:00 pmto3:00 pm

A Representative Payee is an individual or organization designated to receive SSI or SSDI benefits for individuals who cannot manage or direct someone else to manage their money. This service is essential to helping the most vulnerable beneficiaries manage basic necessities such as the daily and weekly costs of rent, food and clothing. In many parts of the country, there are serious shortages in the availability of qualified individuals and organizations to serve as Representative Payees.

NAMI is working with the SSA to help address this crisis and find more individuals and non-profits willing to serve as Representative Payees on behalf of SSI and SSDI beneficiaries living with serious mental illnesses. As part of this effort, the SSA is hosting a free webinar on Friday, June 15 at 2:00 p.m. eastern time for NAMI leaders and others in the mental health community s to learn about what they can do in their local communities to assist in finding individuals and non-profits willing to perform this vital service.

NAMI grassroots leaders and advocates are encouraged to participate. We would also appreciate anything you can do to reach out to others in your communities about this important webinar.

Visit the webinar page for more information and to register.

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Dr. Richard Solomon talks about Autism and the Play Project

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Ogden ILC Meet your candidates

Meet the Candidates!


Tri-County ILC, Family Advocacy and People First are partnering together to hold an even that will give people in the community an opportunity to hear from candidates that will be running for office in the upcoming election.  It’s important that these legislators are informed about issues that you care about so we can best decide who we want to support and vote for.  This event will allow people to hear from the candidates and ask them question regarding issues concerning people with disabilities.


Tuesday May 29, 2012

6:00 p.m.


Tri-County Independent Living Center, 2726 Washington Boulevard  Ogden, UT 84401

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Lifetime access pass for national parks

Below is information about the National Park Service’s “ACCESS PASS”.  This is a pass for US Citizens and permanent residents who have  a documented disabilities, allowing free admittance into National Parks and over 2000 federal recreation sites managed by the BLM, Reclamation, Fish and Wildlife and Forest Service.  (This is only for entrance fees.  Campground and other fees still apply.)
Passes may be obtained in person at one of those locations or via mail.  There is a one time $10 document processing fee.
To learn more, check out
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Camp K camps

Dear special educators, pediatricians, therapists, and parents:

Camp K still has a few openings for teens with cognitive special needs (June 11-15), youth with physical special needs (June 18-22) and kids/teens ages 7 to 12  with cognitive special needs (June 25-29th).  Please help us spread the word to parents and students: don’t miss this rare opportunity to register your child for summer camp, where they will ride horses, swim, fish, canoe, climb and make new friends! Includes three meals and snacks/day, full-time on-site nurse, partial to full assist with activities of daily living (medications, special diets, dressing, eating, personal care if necessary) and ratio of one background checked counselor per 2 or 3 campers!  Scholarships and funds from your child’s DSPD account may be available.  Register today, and plan to attend our Family Fun Day/Picnic/Open House on June 2 to meet our wonderful, compassionate staff and experience the fun that Camp K has to offer children with special needs!

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Tell Dr. Phil: Nothing About Us Without Us!

The National Independent Living Center has joined advocacy groups from Utah and around the United States in sending a letter to the Dr. Phil Show regarding a segment that aired on April 13, 2012 and presented a rather one-sided view of the idea that parents should be allowed to euthanize children with disabilities. To sign this letter and learn more, please click on the link below. Action is needed TODAY!

email : Webview : Tell Dr. Phil: Nothing About Us Without Us!.

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Medicaid Autism Waiver Draft 5.24.12.pdf (application/pdf Object)

The draft waiver application has been posted for the Utah Medicaid Autism Waiver.  Please click on the following link to review the draft. This is NOT the consumer application. This is the application to Medicaid to begin the Autism Waiver.

Medicaid Autism Waiver Draft 5.24.12.pdf (application/pdf Object).

If you would like to comment on the application, do so at

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